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Gay Bodies, Gay Selves:
Understanding the Gay Men’s Health Movement
Eric Rofes
Gay
Men are healthy, happy, and life affirming. We’re creative, strong,
and resilient; more than almost any other male population, we think
outside the box, take responsibility for our actions, and care for our
selves and others. We know how to get what we want and we know how to
create lives that are satisfying and fulfilling.
In fact, we’ve developed our own home-grown social networks, support
structures, and communal rituals, all of which are more functional,
nurturing and sustaining in today’s environment than monogamous couples
and nuclear families. More than most others, gay men know how to find
community—even when it’s hidden—and build community—even in the face
of formidable obstacles.
I make these claims based on what I’ve observed over thirty years of
living as a gay man who’s maintained deep involvement in gay community
life and lived most of his adult years in urban gay enclaves. I offer
what I’ve learned to anyone hoping to become a contributing part of
something called the “gay men’s health movement.” If you don’t take
as your starting point that most gay men are already happy, healthy,
and successful, this movement isn’t for you.
Nothing convinces me of the healthiness of gay men’s communities more
than our relationship to HIV/AIDS. I say this knowing that our infection
rates for HIV are precisely what most concerns those who see gay men
as tragic, diseased and self-destructive and motivates them to repeatedly
harangue us. The annual incidence of new HIV infections among gay men,
between one and two percent each year over the past 10 years, is put
forward as proof that we’ve returned to our wicked ways. Because 1-2%
of uninfected gay men become infected with HIV each year, many people
believe we are an irresponsible population unconcerned with our own
health and that of other gay men.
While we might wish we could reach a point when no new infections occur
among gay men in a single year, we know that once a disease become endemic
to a population—as HIV has become endemic to American gay men—it requires
radical interventions, such as vaccines or new technologies, to eliminate.
Twenty-five years into the epidemic, with a few geographic and population-specific
exceptions—exceptions that are important and which merit resources and
attention—gay men have shown that the large majority (between 70-80%)
of us are capable of remaining uninfected. If we have brought the infection
rate for gay men in most parts of the nation down below 20%, this suggests
that more than 80% of us are capable of doing what needs to be done
to stay uninfected. Likewise, if about 25% of gay men in major gay centers
such as San Francisco and 15% in New York are HIV positive, this suggests
that even there, almost three out of four of us remain uninfected.
This is a big deal, but it is never the focus of the doomsayers. It
confounds what they think of us. In fact, it came as an extraordinary
realization to me. If the majority of gay men can do what needs to be
done to prevent HIV infection, we must be doing something right. If
we were truly self-destructive, wouldn’t more than 75% of us to be infected,
especially since the virus is so efficiently transmitted through sexual
activity that brings great pleasure to most gay men.
The past 25 years has been a time when an inaccurate and phobic portrait
of gay men as sick and self-destructive has been put forward, accepted
as true, and taken hold as a central part of deeply ingrained public
beliefs of gay men. In fact, I believe that the very systems created
to protect and care for gay men—HIV prevention, addiction recovery programs,
even gay-oriented mental health programs—use as foundational building
blocks a pathology-focused understanding of gay men. Perhaps most extraordinarily,
this same belief that gay men are damaged and dangerous has started
to infuse some of the projects that are being created in the name of
the “gay men’s health movement.”
In most of America today—including most gay centers, health clinics,
and AIDS prevention programs—one can find others who look at gay men’s
sexual practices, patterns of socializing, and cultural norms as troubling.
Here one can find professionals who’ll examine gay male subculture,
shake their heads, and point out what’s wrong. Whether the subculture
involves urban street youth, bears, circuit boys, Black MSM’s, bare-backers,
muscle boys, or leather men, you can find someone who’ll point out substance
abuse, obesity, narcissism, low self-esteem, food disorders, and internalized
homophobia as major themes of gay male life in America. You can create
programs, write grants, establish projects, and make speeches decrying
the “epidemic of epidemics” facing gay men, expressing surprise and
dismay at the sexual practices of gay men, and identifying homophobia,
internalized or externalized, as the dominant force influencing gay
male life today.
But you’re wrong. You’ll win grant funding. You’ll get great press coverage.
You’ll sell books. You’ll win community service awards. But you’re wrong.
You would be popular because you would buy fully into the dominant thinking
about gay men that reigns throughout American culture today. Whether
taking the form of pity or disgust, sincere concern or superficial empathy,
blaming or shaming, the overarching understanding of gay men’s lives
today is one of tragedy and pathos. Why are they so sex obsessed? Why
do they do so many drugs? Why do they use steroids, work out obsessively,
and dye their hair as they age? Why do they have to cruise all the time?
You’d be affirming the overarching belief that gay male culture is immature,
irresponsible, and irrational.
These views have been put forward for over 25 years by both conservative,
Radical Right, up-front enemies of equality for gay people, as well
as by liberal thinkers who rhetorically embrace the humanity of gay
men, even as they condemn it. Why is the initial impulse of so many
people—liberals and conservatives alike—to mistake creative and life-affirming
pockets of gay male life as sick and self destructive? What is the difference
between arch-conservative Paul Cameron citing gay men’s sex, sexual
values, and sexual cultures with disgust and disapprobation, and liberal
Larry Kramer citing gay men’s sex, sexual values, and sexual cultures
with disgust and disapprobation? What is it about the various ways we
mix masculinity, sex, and pleasure that must be censured and derided
by both the left and the right?
Those of us who were there in the early days of the gay men’s health
movement look at gay men today—and at the communities where gay men
come together, establish bonds, and celebrate—and see creativity, caring,
and audacity. We’re delighted and impressed with new generations of
gay male styles, rituals, identities, and subcultures, even as we remember
that gay men have always had an amazing ability to keep inventing bold,
new ways of being, even in the face of commodification, backlash, and
internal civil wars.
In fact, we know that for many gay men, homosexuality is a helpful and
protective factor, it adds to the assets and gifts one gets from one’s
original or home community in key ways:
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Gay men are more mindful than most others and think
out of the box, resisting limited social categories and societal directives.
The simple experience of claiming our sexuality, identifying other
men with whom to have sex with, and entering gay community encourages
mindfulness and creativity.
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As a class, gay men are skilled at both caring for themselves
and caring for others. What some mistake as selfishness in gay men
is often a kind of self-care that is rarely criticized in other men:
the ability to understand and prioritize one’s own desires and needs.
As David Nimmons has so well documented, Gay men balance this self-care
with a large sense of altruism—caring for others in the workplace,
neighborhood, and community.
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Gay sexual culture allow us to make contact with men
of other classes, races, and generations and form alliances which
are richer and more diverse than those of most heterosexual men. Not
only do we have sex with men who are different from us, but we form
friendships and build community—however imperfectly—across stark identity
lines.
In some ways, we take our lead from the women’s self-help movement of
the 1960s, 70s, and 80s a movement that powerfully influenced gay liberation
and gay men’s health organizing at that time. When women declared “Our
Bodies, Ourselves,” they were shattering centuries of patriarchal
pathologizing of women’s bodies and their lives. By working with other
women to create new models of empowered health care and disease prevention,
groups such as the Boston
Women’s Health Book Collective, the Santa Cruz Women’s Health
Collective, the National Black Women’s Health Project, and others, created
a powerful model for marginalized populations—including gay men and
people with HIV/AIDS—seeking to make a radical break with the dominant
medical model along with all of its embedded biases, values, and priorities.
My Journey Into the
Gay Men’s Health Movement
I’ve been interested in the health and wellness of gay male communities
since my earliest years as an activist, organizer, and writer. In my
early twenties in Boston, I was a member of the Gay Community News
collective and wrote regular feature articles on topics including anti-gay
violence, queer youth, and depression and suicide among lesbians and
gay men. I was fortunate to be involved in founding some of the nation’s
first advocacy projects for LGBT youth, served as an openly gay representative
on a state social service council and at the White House Conference
on the Family in 1980, and wrote the first book on gay people and suicide.
I was drawn to this work, in part, because I believed that the silences
surrounding homosexuality and the way gay people’s life trajectories
were impacted by homophobia needed to be changed. I was also drawn to
this work because of challenges I faced as a young man coming out in
the early and mid-1970s. I became part of a movement, in Boston and
beyond, that took on the massive project of changing the social and
political position of homosexuality in our nation in order to improve
the health, well-being, and life chances of a socially stigmatized and
much-hated population. But at that time I didn’t think of myself as
part of a gay men’s health movement. I was part of the lesbian and gay
liberation movement.
During this same moment, I was tremendously influenced by feminist organizing,
including the efforts of lesbian feminists throughout the United States.
At different times I have struggled to understand why feminism became
so central to my early gay male organizing activities. I was often one
of the few men at women’s music concerts; I joined picket lines at reproductive
health centers that stood up against anti-choice activists; I avidly
read the work of Adrienne Rich, Barbara and Beverly Smith, Cherrie Moraga,
Gayle Rubin, Amber Hollibaugh, Andrea Dworkin, Mary Daly, Jewelle Gomez,
Dorothy Allison, and Audre Lorde. While always aware that my obsession
with lesbian feminism was far from altruistic, only in hindsight do
I believe that I was mining feminist theory and practice for ideas and
models that could best be applied to gay men. Even when I disagreed
with specific analyses of patriarchy or recommendations for specific
forms of activism, feminism taught me more about issues of power, privilege,
and resistance than any other literature during that era.
At the same time, I was diving head first into gay male social spaces
and the sexual cultures of the 1970s. Like most young gay men at the
time, I found myself entering a world with values and norms very different
from the social worlds I’d inhabited previously. I was drawn to gay
bar life, disco dancing and leather clubs. I found myself in rooms packed
full of men; in discos where hundreds of men were gyrating, sweating,
and shouting. I found myself meeting a wildly diverse array of men and
going back to their homes. I was exposed to men living in conditions
vastly different from my own college dorm: public housing, working-class
shared apartments, upscale urban penthouses. I had the privilege of
observing men up close, often men from other races and classes distinct
from my own middle-class Jewish, Long Island background.
My early time in gay community life was profoundly influenced by the
Stonewall political moment and the hippie-counterculture gay lib society.
By the time I was out of college in 1976, that moment had pretty much
ended, morphing into both the commercialized disco-bathhouse culture
of the 1970s and the mainstream gay rights movement. At the same time,
gay liberation—influenced, I believe, by feminism—exerted a powerful
influence over the ways many of us thought about health, safety, and
the wellness of gay men. In fact, the only observations and analyses
of gay male life that seemed to bear any resemblance to the worlds in
which I found myself came from gay liberationists.
I now see myself as the fortunate recipient of the hard work of gay
liberationists who had created new ways of thinking about gay men’s
health, thinking that is often either totally ignored today or diminished
and mocked. Responding to pre-liberationist beliefs that gay men as
a class were sick, sinful, and criminal, the gay liberationists broke
new ground in seeing gay men otherwise. Among the key understandings
I took from gay liberation were:
1. Gay is good.
While many people now look back on the “gay is good” moment as inconsequential,
simpleminded, even trite, this notion struck me in 1975 as truly revolutionary.
Not only were gay liberationists challenging the idea that gay is bad,
but they were challenging the liberal notion that sexual orientation
is neutral. From gay liberation I learned that the enactment of homosexuality
itself, and the claiming of a gay identity, were powerful, transformative,
and good. Gay was not sick, diseased, or bad. Gay was not value-neutral.
Gay was good. Gay was very good. Gay was excellent.
I’ve been struck by the different paths lesbians and gay men took on
this “gay is good” issue. Back in the 1970s, through lesbian-feminism,
dykes had no trouble asserting that their claim to a lesbian identity
was a powerful and positive move into values and lifestyles that were
healthy and life affirming. They understood that our movement was about
creating new forms of social organization, cultural rituals, and worldviews
that offered much that was valuable to the world. And over the years,
dykes have provided a wonderful model of addressing health challenges
in a specific population (in their case, cancer and substance abuse)
without allowing the concept of disease and the illness construct to
merge into the community’s self concept and take it over.
Gay men tried to do the same thing in the 1970s: address health challenges
without defaulting to a “we are a diseased population” model. However,
in the years following gay liberation, we lost most of the language
and political analysis to rhetorically affirm the value of the new worlds
we were creating.
Discos might be “fun”; leather culture was “edgy”; bathhouses were “wild”
and “ecstatic,” but, except on rare occasions, we didn’t articulate
the valuable political ramifications of the new social order we were
creating.
Lesbians had feminism, which led to the creation of a huge array of
publications, texts, cultural institutions, and organizations explicitly
founded on the linkages between lesbian identity and feminisms. While
a few gay men embraced the small and problematic “men’s liberation”
movement, gay men (for the most part) avoided a political meta-analysis
of their lives and simply dove into the work of pioneering new cultural
norms, new ways of being men, and new forms of social organization.
Because so many of us stepped outside the arenas that served as intellectual
incubators for new analyses of gender and sexual identities, and instead
immersed ourselves in cultural spaces that were themselves incubators
of new gender and sexual identities and new relationships to traditional
forms of masculinity, we left ourselves vulnerable to a backlash against
the new gay masculinities. The dykes could fall back on the words of
Audre Lorde, and others; few gay men put forward books that articulated
the political value of the emerging gay male cultures and these men
(for example, John Preston, Ivo Dominguez, Jr., Dennis Altman, Michael
Bronski) attracted few readers to their political writings.
The backlash against gay as good emerged subtly during the first decade
of AIDS; debates about gay sex practices, illness, and contagion, and
quietly but steadily eroded our new barriers of defense against pathologized
notions of male homosexuality. Many of us were distracted by unanticipated
and overwhelming demands on our time: our friends, lovers, and neighbors
becoming weak, spotted, and demented.
It’s not surprising that few of us could see this particular conceptual
backlash heading our way. Even as we put forward to the public evidence
indicating that gay men were behaving responsibly, that the epidemic
had chastened our cultures, and that gay men exiting the bathhouses
and enrolling en masse in volunteer programs to care for the sick and
dying, we were affirming—through our defensiveness—the pre-gay-lib beliefs
that gay men were one-dimensional, sexually obsessed, irresponsible
adolescents.
During that first decade of AIDS while we were changing diapers and
emptying bedpans, society, including gay male society, was reevaluating
its beliefs about gay men and gay male culture, after only a few years
of the gay-lib-inspired rethinking of gay male culture. AIDS affirmed
pre-liberation views of gay men as diseased. The backlash effectively
erased any substantive memory of “gay is good” from gay men’s understanding
of themselves and their communities and cultures. In its place a powerful
return of the “gay as pathology” or “gay is diseased” construct emerged,
a construct that, by the 1990s, moved into a dominant position in the
minds of gay journalists, AIDS prevention workers, and gay political
leaders. .
By 1995, any one seriously expressing even a limited notion of “gay
is good” about gay men was seen as delusional, in denial, or seriously
disturbed. Instead, a pathologized vision of gay men and gay male culture
took hold: circuit parties were bad; the leather scene was bad; the
gay ghetto was bad; young gay men were bad.
2. Gay men can take care of themselves.
I came into a community where I quickly learned that gay men could care
for themselves and care for each other. Not that this was a community
without internal problems and that, pre-AIDS, that there weren’t significant
health challenges facing us.
At the same time, my mentors schooled me in the caring spirit of the
times: that we lived in a world where almost all institutions were hostile
to our kind and, if we were to survive and thrive, that we had to take
care of our own.
On the micro-level, this involved sharing information about health providers
who were gay-friendly or offered non-judgmental treatment for sexually
transmitted infections. It involved sitting out sex for a week when
we were being treated for gonorrhea. It involved participating in fundraising
efforts—before AIDS—to support the founding of gay centers, addiction
recovery programs, STD clinics, and mental health services. The decade
preceding AIDS, often depicted today as a time when gay men selfishly
pursued their own sexual urges and did little to support community wellness
was actually a time when men in urban centers took on the public health
establishment and forced it to create or support the creation of STD
prevention materials and services specifically for us.
On the macro level, this spirit of caring for our own created dozens
of organizations and projects devoted to gay community self-care. This
was a time when gay men in dozens of urban and rural locations joined
with lesbians and transgender people to force Alcoholics Anonymous and
other 12-step programs to incorporate the specific needs of sexual minority
alcoholics and addicts. It was a time when gay publications throughout
the nation regularly provided coverage of STD threats, information on
treatment locations, and detailed material about self-care and prevention.
Many people today believe that the massive and much heralded gay response
to AIDS in 1980s was new and without precedent, providing evidence of
a surprising shift in the commitments of gay male communities throughout
the nation. Nothing is further from the truth. Our model of volunteer-based
care for people with emotional, physical or practical needs emerged
from the same hippie-gay-lib spirit that created drop-in centers, crash
pads, and emergency job programs for gays and lesbians in the 1970s.
Our fundraising walks and mass events built on similar already-existing
events in urban gay centers that previously had raised money for gay
STD clinics or mental health services or, in some cases, guide dogs
for the blind, toys for tots, or other public charities. What the nation
witnessed in the massive gay response to AIDS in the 1980s was an expanded
version of earlier efforts focused on caring for ourselves and caring
for others that emerged prominently in the 1970s.
3. Political action and protecting the
health and wellness of the community are inextricably linked.
Gay liberation mentors such as Morris Kight and Don Kilhefner in Los
Angeles explained to me early on that there was a strategic connection
between gay activism and social services, the same connection that many
other marginalized populations articulated back in the 1960s and 1970s.
The early days of gay liberation made it clear that many men needed
venues that would assist them to heal from the assaults of societal
homophobia and that gay clinics and community centers and rap groups
were designed as spaces to support that healing in a community-based
model. Hence gay political activism was intended to change the world
so that fewer people would suffer and be damaged by homo-hatred, and
gay health work was about healing people so they might reenter the political
movement as whole people. Activism, itself, was healing; health work,
itself, was activism.
Back in those days I did not divide my work on gay community projects
into “health work” and “political work,” and I’m sure many other men
did likewise. Working in gay STD clinics was political work. Working
to end anti-gay discrimination was health work. One of the benefits
of being cast outside of all traditional mainstream systems was that
we were left on our own with our own renegade way of understanding our
work. When we attended events such as the New England Gay Conference
or the Southeastern Lesbian and Gay Conference or the Maine Gay Symposium,
politics, activism, health, and culture were entwined. Our lives led
us to understand on a visceral level the powerful political underpinnings
of community health and wellness.
I brought these three foundational beliefs—gay is good, the value of
taking care of our own, and the inherent linkage between gay politics
and health work—to my work in gay community centers and AIDS organizations
in the 1980s, even as the world around me was shifting rapidly back
into a disease model of homosexuality and taking on a professionalized
work force of medical providers, mental health counselors, and addiction
recovery workers that favored distanced, academic knowledge over community-based
home-grown wisdom and a view of homosexuality as a disease model. As
director of the Los Angeles Gay and Lesbian Community Services Center,
which Morris Kight and Don Kilhefner founded, I worked with a powerful
team of gay men and women to provide an array of social services to
LGBT people using models that empowered rather than infantilized or
made people dependent on a human services bureaucracy. When I moved
to San Francisco to direct Shanti Project, a pioneering AIDS care group,
I found myself working with hundreds of volunteers under unbelievable
pressure to provide care for people with HIV, using a model that allowed
people with HIV to maintain the locus of control over their health and
medical decisions, rather than passing it to professional case managers,
as is now more commonly the case.
These models and systems of care were founded on the belief that people
controlled their own bodies and should control their own health care.
Professionals were there only to assist these activities, not to direct
or manage them. Any attempt to shift control onto professional health
providers was understood as damaging, disempowering, and, ultimately,
anti-gay. Learning from the feminist self-help movement, we understood
the central role of power and authority in promoting or undermining
health. We wanted to support the creation of powerful communities.
How Gay Became Sick Again
During the first decade of AIDS response, many of us were so caught
up in the day-to-day work of prevention, care, and political activism
that we didn’t note the profound shift that was occurring in the ways
social institutions, health care providers, and gay men themselves looked
at gay men’s relationship to health. While internal community battles
were clearly about whether we still believed gay was good or whether
gay men could care for themselves and each other (I’m thinking here
about struggling with how to have sex in an epidemic, the closing of
bathhouses, or making a distinction between being an “AIDS victim” and
being a “person with AIDS”), many of us were so focused on the tasks
at hand that we barely had time for big-picture thinking. Before we
knew it, the 1990s had arrived, the tidal wave of AIDS had crested,
and we were looking out over a vastly different landscape of gay men’s
health with vastly different understandings of gay men’s communities
and cultures.
By 1993, it became clear to many of us that one of the most pernicious
consequences of AIDS was the way it re-pathologized homosexuality, particularly
male homosexuality. And the most painful part of this return to gay-men-as-diseased-pariahs
was that gay men were the most prominent mouthpieces espousing these
beliefs. The same voices that spent a decade over-stating, over-praising,
over-citing gay men’s “sensible” and “prudent” response to HIV/AIDS—the
gay medical establishment, gay public officials, gay mental health workers,
and queer journalists—now seemed intent to balance their earlier pronouncements
with an intense demonization of gay men, gay social structures, and,
particularly, gay men’s sexual cultures.
All of a sudden, it seemed like the wisdom of gay liberation was seen
as a relic: homey sentiments and sweet, dated rhetoric of another era.
Clearly an epidemic as extreme as HIV demanded more than self-care,
more than “gay-is-good” sloganeering, more than political action linked
to health services.
In the minds of many, AIDS proved that gay liberationists were wrong.
Gay men were, in fact, not capable of caring for themselves and others;
in fact, not only did homosexuals bring this epidemic onto themselves,
but they were responsible for HIV becoming endemic by repeatedly and
knowingly infecting one another. All of a sudden gay men became damaged
goods—damaged by homophobia, damaged by AIDS, damaged by out-of-control
sexuality, damaged by addiction. Damaged goods demand a paradigm of
health promotion different from a community empowerment model, one focused
on surveillance, control, discipline, and punishment—a paradigm that
treats adults like children, a model focused on the colonizer and the
colonized.
Hence by the mid-1990s, the dominant understanding of gay men and health
was one where gay men were seen as spinning out of control, incapable
of self-care, and terribly self-destructive and irresponsible. Medical
providers, researchers, journalists, and AIDS prevention leaders—gay
and straight—looking at our sex, substance use, community rituals, and
social structures seemed almost unified in their assessment: gay men
sought pleasure at the expense of health, self-care, and community responsibility.
Even a thoughtful, well-planned 1994 conference—the National Summit
on HIV Prevention for Gay Men, Bisexuals and Lesbians at Risk, held
in Dallas and hosted by the Gay and Lesbian Medical Association to draw
attention to continuing seroconversions—deteriorated into frustrated
finger-pointing and blaming. I recall one respected lesbian leader wagging
her finger and expressing her frustration and her horror that gay men
couldn’t keep “keep their dicks zippered up” during a health crisis.
Throughout these years, some of us tried to offer more nuanced arguments
rooted in our gay liberation values. When issues arose, we tried to
understand gay men’s behavior from our own perspectives: What were such
behaviors really about? What needs were being met? We tried to approach
community controversies with an eye towards empowerment rather than
punishment. When debates flared in 1996 about circuit parties, bathhouses,
and bare backing, we tried to offer arguments that understood gay men’s
sexual cultures outside a pathology model. We held two “Sex Panic” summits
alongside the National Gay and Lesbian Task Force’s Creating Change
in San Diego and Pittsburgh where about two hundred of us came together
to provide ideological and personal support for fighting local battles,
during an era when the tide of public opinion had clearly turned against
us. But even those efforts were diminished in much of the mainstream
media and the gay press that depicted us as delusional, sex-obsessed
perverts out of touch with the realities of the times.
The forces that saw gay men as essentially sick, diseased, and irresponsible
became dominant on the pages of newspapers and at AIDS conferences.
Whether the topic was new infections among young gay men, bare backing,
crystal use, circuit parties, or even same-sex marriage, the discussion
was dominated by an overarching vision of gay men as sexually obsessed,
self-destructive, and uncaring. At worst, we were seen as menaces to
society. At best, we were excused as victims of societal homophobia,
racism, and indifference. In both cases, we were seen as deficient:
deficient in self-control, deficient in social responsibility, deficient
in health and wellness.
This rhetorical frame for gay men’s cultures began to seep into the
consciousness of regular gay men and soon appeared to dominate the thinking
of gay men themselves. It became common to run into friends, tricks,
and social acquaintances who repeated the new party line about bare
backing or circuit parties or crystal use; some of us recoiled in disgust
and disappointment. All of a sudden a rank and file gay male population
saw itself and others through the disease lens. It was a return to pre
gay-lib days. The homophobes had won the battle!
When we attempted to work in partnership with friends in HIV prevention
organizations we faced surprising challenges. They’d repeatedly affirm
that they shared our beliefs about gay men and health, embraced “sex-positive”
values, and were commitment to “empowerment” (a term that had, by the
1990s, been so overused and misused that it immediately made some of
us skeptical), and then they’d launch advertisement campaigns that were
condescending, patronizing, and deeply anti-gay. An AIDS prevention
industry clueless about how to limit new infections tried almost anything,
including buying into all the foundational assumptions of the Right
that gay men were evil vectors of disease.
It came as no surprise that gay men began to see one another, not as
brothers and caregivers and lovers and comrades in gay liberation, but
as opponents, threats, and enemies to one another’s health. HIV prevention
asked us to treat every man we sexed with as if he were infected, in
order to ensure compliance with the condom code, even when not necessary.
We were told to distrust men’s identified antibody status because “men
lie.” We were force-fed campaigns like “HIV stops with me,” which worked
ironically to drive home—in case anyone doubted it—that there were legions
of positive men out there eager to pass on their virus to vulnerable,
clueless uninfected men.
The sorry state of HIV prevention, the effective re-pathologizing of
gay men as a class, and a rising sex panic emerging from the collusion
of gay male journalists and neo-liberal public officials, finally drove
some of us to organize. Not only did public conversation about gay men
in the early and mid 1990s cause us tremendous heartache and inspire
contentious internal community splits, but it also motivated some of
us to intervene in the discourse and organize alternative sites where
more progressive analyses might be shared.
The Creation of
a Gay Men’s Health Movement
In 1998, when the annual National Lesbian and Gay Health Conference,
which drew together people working on LGBT health issues nationwide,
ceased to exist—its host organization went bankrupt—discussions took
place about finding a new organization to host the event. At the time,
lesbian activists wanted to organize on their own for a few years and
several key leaders encouraged gay men to begin “to get their act together
beyond HIV/AIDS.” This motivated me to work with a small group of other
activists—all under the age of 30—sharing similar values and visions,
to issue a call to the first national gay men’s health summit.
Coming as much out of frustration with HIV prevention work as from the
current sex panic sweeping over gay communities nationwide, our team
of good-hearted organizers volunteered to do what needed to be done
to create a space where people concerned about the health and wellness
of gay male communities could come together and explore the issues outside
of the paradigm of disease and self-destructiveness that had overtaken
other venues. After eight years of intensive gay men’s health organizing
efforts occurring outside the purview of any national gay organization,
we have finally succeeded in creating an alternative to the disease
model of working on gay men’s health issues, an alternative that, while
far from dominant, is being embraced by more and more organizers and
more and more rank and file gay men who sense that there is something
very wrong with how journalists and medical experts continue to talk
about gay men’s communities.
The model we put forward at the first three gay men’s health summits
(2000, 2001, 2003) included at least three beliefs that contrast dramatically
with the beliefs of the disease model. First, we believe that gay men,
at root, i.e. radically are individually and collectively healthy, reasonable,
life-affirming, and successful in creating fulfilling and meaningful
lives. Second, we take an asset-based approach to gay men’s communities,
rather than a deficit-based approach; we look at and build on inherent
community strengths, resources, skills, and values that demonstrate
gay men’s commitment to survive and thrive even under formidable circumstances.
Third, we share in a commitment to approaching gay men as savvy, reasonable
people with a baseline commitment to self-care, community-care, and
disease prevention. Ultimately, we believe that gay men do exist who
appear unreasonable and destructive to themselves and others, but we
believe the current paradigms misrepresent all gay men for this small
group. At the same time, we refuse to separate ourselves and our movement
from these men, create programs only for “goodies” and avoid the “baddies,”
or write them off as inhuman or inhumane.
We organized our small group of national summits with the intent of
dispersing these ideas and values widely throughout the nation in a
manner that was decentralized, unstructured, ultimately beyond our control.
Inspired by Alberto Melucci’s work on contemporary social movements
and Michel Maffesoli’s work on neotribalism, we believed that, in today’s
world, paradigm shifts can result from new, creative organizing techniques.
We rolled up our sleeves, got down to work, and now, several years later,
see a changing landscape to which we have contributed.
I know I share the joy and satisfaction of many organizers who’ve marveled
at the growing influence our nascent gay men’s health movement has had
and the many projects and events that seem at least partially inspired
by our work. Over 30 local and regional gay men’s health summits have
been held throughout the nation, including not only events in urban
centers such as New York, San Francisco, and Seattle but summits in
Wilmington, Delaware; Salt Lake City, Utah; and Hartford, Connecticut.
Summits have been held focused on African-American and Latino gay men,
rural Southern men and young gay men.
In the United States, the origins of the term “gay men’s health” are
rooted in the gay liberation movement and at least one organization
utilizing the term in its title remains from that period (Berkeley’s
Gay Men’s Health Collective). However, during the 1980s, after New Yorkers
named their first AIDS organization “Gay Men’s Health Crisis,” the term
seems to have become a euphemism for AIDS. As activist Chris Bartlett
has pointed out, HIV so overwhelmed the community that “gay men’s health”
became synonymous with “HIV/AIDS.”
When we began agitating for a national “gay men’s health” summit in
1998, we seized on the term in an attempt to strategically move its
meaning beyond HIV/AIDS. Our intent was twofold: (1) we hoped to promote
a holistic view of health that incorporated not only medical and mental
health but emotional, political, spiritual, and community health concepts
as well; (2) when we did focus on health threats to gay men, we wanted
HIV/AIDS simply to be included as one of the many ailments facing gay
men, alongside cancer, heart disease, street and domestic violence,
syphilis, obesity, and addiction.
We find ourselves at an unusual moment now, where the term “gay men’s
health” has acquired a certain cachet and is being increasingly taken
up by a diverse range of projects and used in several different ways.
Not all of these projects attempt to tackle the range of health challenges
facing gay men. Few of the projects attempt to shift to a wellness model
and away from the disease model of gay men’s cultures and communities.
Also surprising to many of us is the way the term has been embraced
in other countries, especially Canada, the United Kingdom, Switzerland,
Australia and New Zealand, and, recently, France; we have been surprised
by the large numbers of international participants at the first three
national gay men’s health summits.
Gay men’s health activities currently take the form of organizations,
projects, and campaigns and appear to cluster in at least three different
models:
-
Projects focused on community wellness that tackle a
range of health challenges facing gay men, and were not originally
HIV organizations: This includes not only many of the national, regional,
and local gay men’s health summits, but also organizations such as
San Francisco’s Magnet and Seattle’s Gay City Health Project. These
efforts tackle a broad range of challenges to gay men and attempt
to utilize holistic, sex-positive, and gay-positive approaches. Outside
the United States, programs such as Dialogai in Geneva include a strong
health and wellness focus.
-
HIV/AIDS organizations that substitute “gay men’s health”
language for “HIV prevention,” and also begin to work broadly on non-HIV
health issues affecting gay men’s communities: Dozens of AIDS organizations
throughout the English-speaking West have incorporated “gay men’s
health” in their organizational name or as the name of a project under
their jurisdiction, but few seriously take on a broad menu of health
issues facing gay men and fewer still resist the disease model. Such
projects might that do take on health issues broadly include the Institute
for Gay Men’s Health, a joint project of AIDS Project Los Angeles
and Gay Men’s Health Crisis that defines health broadly to include
spiritual and community health and appears to conscientiously avoid
utilizing the pathology model when scrutinizing subcultures of men
who have sex with men. Philadelphia’s Safeguards began as an HIV prevention
organization for gay men and has now broadened into an LGBT health
advocacy agency. Internationally, Australia’s ACON has more recently
also shifted from solely HIV/AIDS to a broad LGBT health matters,
as has the Terrence Higgins Trust and Gay Men Fighting AIDS in London.
-
HIV/AIDS organizations that substitute “gay men’s health”
language for “HIV prevention,” even as they continue largely to work
narrowly on HIV/AIDS: Tucson’s Gay Men’s Health Project, which augments
a strong HIV prevention focus with social activities, is an example
of this type of effort, or San Francisco AIDS Foundations’ Gay Life
program which maintains a narrow objective of HIV prevention, though
might tackle it through other health issues affecting infection rates,
such as programs currently being developed to fight crystal use among
gay men. New Zealand AIDS Foundation’s Gay Men’s Health Teams seem
to fit this model as well.
The work ahead seems daunting but the path forward seems clear. We
must work hard to augment narrow HIV prevention programs for gay men
with a full range of activities addressing the overall holistic wellness
of local and regional gay men’s communities. At the same time, we need
to focus on affirming the overarching framework of community health
that we bring to these efforts. Our goal is not only to blanket the
nation with diverse gay men’s health projects as we blanketed the nation
in the 1980s with HIV prevention projects. Instead we need to shift
from seeing gay communities and subcultures as problematic or diseased,
to seeing them as healthy, happy, and life affirming. This is the bottom
line for any gay men’s health movement.
Recently I attended a dance party, one of the many evenings of intense
music and cavorting available to thousands of gay men in my city each
weekend. I looked over the crowd of primarily twenty-something and thirty-something
men, shirtless, gyrating, arms reaching to the heavens. I thought immediately
at how the doomsayers criticize this population of young gay men, saying
things such as, “I didn’t work my ass off during the past 30 years to
create a culture of drug use and unprotected sex and self-centered me-me-me
attitudes. This is not what the gay movement was all about. This is
not what we envisioned when we tried to save lives during the worst
of the AIDS years. This is not the world we were trying to create.”
And then I realized something, something surprising and simple. As someone
who has spent the last 30 years working on gay liberation and AIDS activism
and sexual liberation, what I saw before me was precisely the world
I was trying to create. When we fought during the 1980s and 1990s to
prevent gay men’s sexual cultures from being destroyed, when we worked
to preserve certain values about gender play, friendship, and erotic
desire, when we quietly worked behind the scenes to ensure that certain
spaces would survive gentrification and public health crackdowns, we
were fighting to preserve the ability of new generations of gay men
to create worlds of pleasure and desire. As I looked out over the sea
of dancing men, I realized, despite all the battles we’ve lost in terms
of politics and discourse and the media, gay men and gay sexual cultures
had managed to survive and, indeed, thrive.
Eric Rofes was the convener of the first three national Gay Men’s
Health Summits and serves on the Advisory Board for White Crane Institute.
He is a long-time activist and community organizer and has published
over a dozen books, most recently A Radical Rethinking of Sexuality
and Schooling: Status Quo or Status Queer (Rowman & Littlefield).
He is a professor of education at Humboldt State University and is completing
a book on organizing a gay men’s health movement and working on a play
about men who test positive today. He is based in San Francisco and
can be reached at eerofes@aol.com
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